Dr Claire Taylor
Dr Claire Taylor

@drclairetaylor

17 Tweets Jul 01, 2024
Excellent article on dogma in medical research.
‘A senior faculty member stood up&said neuroinflammation has nothing to do with Alzheimer’s,” she recalled. “It was intimidating.”
Now amyloid treatments have failed, they are looking at neuroinflammation&anti-virals.
Most scientists could not get past amyloid as the cause of Alzheimer’s, instead of the product of the cause.
Meanwhile, patients suffer and die with Alzheimer’s, including one of my own family members. It is an horrific disease.
I know what it feels like to stand up&say there is neuroinflammation in long Covid&ME/CFS and be talked about.
I know what it feels like to have another physician tell my patients to come off all the meds I gave them
that actually work&do CBT instead.
Sounds unbelievable,right?
Dogma. Usually it is only a few people saying, actually, I think we need to look at this another way, and no one will listen.
It resulted in Dr Marshall ingesting the bacteria h.pylori to prove it caused stomach ulcers
Previously to that, stomach ulcers were thought to be due to stress.
Does that ring a bell for anyone? 🛎️
- ME/CFS
- Long Covid
- POTS
- IBS
-MS
Read the astonishing h.pylori story here
gutscharity.org.uk
To have a paradigm shift in medicine can take decades.
I wrote my thesis in neuroscience on therapeutic targets for Alzheimer’s in 2002.
I wrote about neuroinflammation and pathogens.
I then decided to do medicine instead of a Phd & didn’t think much more about it.
I knew that we were not finding anything that made a real difference in Alzheimer’s.
My grandad eventually passed away from it.
Now, finally, researchers are getting away from just targeting amyloid.
20 years since I wrote about it.
ME/CFS research has been dominated by psychological treatments such as CBT and graded exercise for decades.
A literature search will show where the money has went.
Let’s not make it 2 more decades of dogma in ME/CFS and long Covid.
I now see a new kind of thinking. It’s really exciting. An international group of doctors and scientists who can now connect easily due to the developments in communication and social media.
However, each time one publishes they are rubbished publicly.
Each time a talk is given, derogatory remarks get back to the person or are written on Twitter.
It can feel like you are banging your head against. A brick wall.
I bet that’s how those Alzheimer’s researchers felt.
How Dr Marshall felt.
To get a paradigm shift is a monumental task.
But I see signs of it every day, every week. Doctors seeing their patients improving with treatment, now confident to try it themselves
Scientists showing rapid ground breaking work like @DaniBeckman @VirusesImmunity @AndrewEwing11 @resiapretorius @dbkell
@Daltmann10
@microbeminded2
Amongst many many more
Doctors talking, comparing, absolutely committed to making their patients’ lives better such as
@Sunny_Rae1 @BinitaKane @dysclinic @MichaelPelusoMD @DavidJoffe64 @doctorasadkhan @surf4children
Amongst many many more
Even patients- @danaparish
@Naomi_D_Harvey writing about it
And I see change on the horizon. Hang in there. Please.
Dr Marshall and Dr Warren spent a decade with their results, trying to convince others that they had found the cause of stomach ulcers - the bacteria helicobacter pylori.
A whole decade.
‘Marshall & Warren’s work was debated by gastroenterologists across the globe about for around 10 years after it was first published. It wasn’t until a PR company came across the research and published it as a mainstream story that interest in the pair’s work built. ‘
They were eventually awarded the Nobel prize for physiology. 💫
It’s time to put ‘beliefs’ aside &not spend decades with the solution in our hands, being debated.
Patients- hang on in there.
We sent man to the moon in 1969.
We now have so many resources-let’s use them!

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